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The Clubhouse Bar
A Political Thread pt. 2
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<blockquote data-quote="ncurd" data-source="post: 1059014" data-attributes="member: 72205"><p>Yeah my Mum's last few weeks were far from pleasant, poison to her brain basically meant her thinking faculties were gone, she was also clearly in a huge amount of distress. Add with that the fact we had only 2 hours of visiting a day because she was technically not on 'end of life' care and we missed moving her to a hospice by days. We need to do a loads more for dying and their families, in terms of bereavement aftercare we essentially offered none and when I hit the verge of a breakdown nearly 6 months later it took a year before I could access any one to one services.</p><p></p><p>Going back though I get the feeling the Doctors couldn't put her on end of life care officially because there wasn't the capacity for it, even then I'm unsure she'd have been given more sedatives than she had. She was a lot happier in the ICU but the NHS doesn't have that level of support for 'lost causes'. The reality is we should of been given more options when in reality we had none and what we got was probably the worst possible situation.</p><p></p><p>On the mental health thing that's exactly what happen with my mother as well, she had a long standing agreement with my father not to die at home and make the other a full time carer. Even though her mental capacity was diminished enough that the doctors forced treatment when she refused it when she demanded to go home that meant we had a week of added beauracuacy to go through to make a decision to move her to a hospice against her wishes.</p></blockquote><p></p>
[QUOTE="ncurd, post: 1059014, member: 72205"] Yeah my Mum's last few weeks were far from pleasant, poison to her brain basically meant her thinking faculties were gone, she was also clearly in a huge amount of distress. Add with that the fact we had only 2 hours of visiting a day because she was technically not on 'end of life' care and we missed moving her to a hospice by days. We need to do a loads more for dying and their families, in terms of bereavement aftercare we essentially offered none and when I hit the verge of a breakdown nearly 6 months later it took a year before I could access any one to one services. Going back though I get the feeling the Doctors couldn't put her on end of life care officially because there wasn't the capacity for it, even then I'm unsure she'd have been given more sedatives than she had. She was a lot happier in the ICU but the NHS doesn't have that level of support for 'lost causes'. The reality is we should of been given more options when in reality we had none and what we got was probably the worst possible situation. On the mental health thing that's exactly what happen with my mother as well, she had a long standing agreement with my father not to die at home and make the other a full time carer. Even though her mental capacity was diminished enough that the doctors forced treatment when she refused it when she demanded to go home that meant we had a week of added beauracuacy to go through to make a decision to move her to a hospice against her wishes. [/QUOTE]
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